Happy Birthday to our Angel Sean William Venezia
SMA, Spinal Muscular Atrophy, Number one genetic killer of children under 2. One in 35 is a carrier for this disease, and one in every 6,000 live birth's is affected. Kaydence had type one which meant that she never had the chance to roll over, sit on her own and even had trouble holding her head up. This disease robs children of the ability to move their arms and legs. They lose the ability to eat on their own , and even have some problems breathing. As devastating as this sounds the children with SMA are extremely bright and forever happy. Their minds are fully intact and they tend to run on the higher side of intelligence. They are so close to finding a cure that it has been said with more financial funding they believe they can have a treatment in place in 7 years. Can you imagine being able to help these children and all we need is money!! please browse our site, view our pictures, visit the sites and find it in your heart to donate to such a worthy cause and help save the beautiful children like Kaydence.
This site is not only dedicated to our angel Kaydence, but to every SMA Angel in the world. We would also like to extend our welcome to the parents of ANY SMA Angel, to have your Angel added to a memorial quilt being made to raise the awareness of Spinal Muscular Atrophy.
Check out our Angel Wings Awareness Quilt
|Rebecca Run is this weekend and we will be there. Check the Quilt News for more. |
|Posted: July 5th 2007 @ 4:57 AM|
Long lost pictures...
|Well Kate's locker ate them at work, but they're finally here. The Mr Bear pictures. You can find them here. You can follow the rest of Mr Bear's journey Here. |
|Posted: March 7th 2006 @ 3:40 PM|
SMA Night to Remember
|Read the full story here. |
|Posted: February 16th 2006 @ 2:31 AM|
|I got some new images and some new scripts, the falling images have been changed so they are semi-transparent to make it easier to read the text as well as the top banner cause it looked neat. |
|Posted: February 9th 2006 @ 10:20 PM|
39 Pounds of Love
|We went to see 39 Pounds Of Love, the story of a 34 year old man, with Spinal Muscular Atrophy, and the story of his adventure. Pictures Here. |
|Posted: February 7th 2006 @ 2:23 AM|